Isle of Wight Association for Spina Bifida & Hydrocephalus

(Updated 18/03/2021)

Isle of Wight Association for Spina Bifida and Hydrocephalus – Practical help on the Isle of Wight.

SPINA BIFIDA is a congenital abnormality resulting in the bones of the spine not joining properly, exposing the spinal cord leaving it liable to damage and infection.  Surgery shortly after birth lessens the risk of infection but inevitably some disability results.  Some are more severely affected and are confined to wheelchairs while others less severely disabled can walk with the aid of calipers and crutches.

HYDROCEPHALUS literally means “water on the brain”.  Excess cerebral fluid accumulates and if untreated can cause brain damage.  Since the early 60s it has been possible to insert a valve to drain the fluid and prevent the build up of pressure.

Both abnormalities can occur independently but often occur together.  Until 1960 most babies with Spina Bifida or Hydrocephalus died soon after birth, but surgical advancements have enabled many born since then to survive.

The Isle of Wight Association members range from babies to adults.

Charity Registration Number: 296313

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